Thursday, March 25, 2010

People With Acromegaly Find Hope Through Magic Foundation

At STINSON, we’ve had the privilege of helping to brand and market products that treat rare and serious diseases. For many, the launch of these brands has been life-changing. Here is some news shared by Nancy Burgess, Director of CHEM at our company.

Imagine having problems with your vision. Maybe you’ve also noticed that your:
  • Rings don’t fit
  • Shoe size went up
  • Jaw has grown or your teeth suddenly have spaces between them
  • Tongue seems to have grown
Maybe you’ve also developed:
  • Skin tags
  • Headaches
  • Sweating
  • Joint pain
This seemingly unrelated constellation of symptoms indicates an excess production of growth hormone, a condition called acromegaly. Acromegaly results from a pituitary tumor, and although the tumor itself is benign, patients typically undergo numerous surgeries and deal with lifelong symptoms. Treatments are aimed at controlling symptoms and growth hormone levels.

What’s worse, many of these people feel alone in their suffering. Most have never met another person with their condition, and it’s hard to get solid information about it. At STINSON, we’ve been privileged to talk to many of these people with acromegaly. We’ve heard their stories and their pain.

Now, there is an opportunity to heal some of that pain.

The Magic Foundation, a patient advocacy group for pituitary disorders is hosting its 5th Annual Convention for Adults with Pituitary Disorders. It takes place on June 11-13 at the Chicago O’Hare Marriott. This year’s meeting includes a session specifically focused on acromegaly.

Those interested in attending can click here to learn more.

If you’ve been suffering alone with acromegaly, you may want to consider attending the June program. Other online peer-to-peer resources include:

Wayne’s website -  
Wayne’s Facebook Group –
Daily Strength –
Hormone Foundation –
Pituitary Network Association: –  http://www/
Blessed-Beyond Measure –

1 comment:

Anonymous said...

Large forehead is also a symtom. Thanks, Mark.